Regular readers know of the patient to patient support sites that Ben Munoz and I have been building. Here's a video that tells our story.
We've been hard at work, but this time we've been joined by a couple friends, and together, we've built Living With Fibro, a support site for people who suffer from Fibromyalgia. We started the site because Diana, a member of LivingWithTN, a support site for Trigeminal Neuralgia, asked us if we could start one for Fibromyalgia. We said sure, but only if she and our other friend Eric Kroll would help us. Eric and Diana started immediately and I'm happy to report that in one week, we already have 15+ members, a new record for the support sites.
Like other rare diseases, folks with Fibromyalgia can find comfort, support and tips for managing the pain by sharing information. That's the goal of Living With Fibro. Check out the site and if you know people who could benefit, please send the site or this post along.