Sunday, August 9, 2009

Living With Trigeminal Neuralgia Video

I'm happy to announce that Ben Munoz and I have created a video explaining our work on the patient to patient support networks for rare diseases that we (& many others) have built over the last few years. We've been working very hard behind the scenes to help get the word out. We now have four sites:
The video below is meant to tell our story and also hopefully reach people on YouTube and other video sites who are looking for support groups for people with rare diseases. Ben did a fantastic job making it with the help of some talented professionals. This video is for Living with Trigeminal Neuralgia but there will be more coming. Enjoy the video and if you think it's good, please log in and rate it in YouTube, that will really help. Also, if you can reblog it and post it (only if you think worthy), that will be a big help too. Thanks. 
We'll have more announcements in the future about ALD Support and a new team member that has joined to help build the networks.