Last month you will recall that my buddy Ben Munoz and I launched LivingWithTN.org. It's a site devoted to patients with Trigeminal Neuralgia (TN) helping other patients with TN. It's modeled on the community that Ben founded after his AVM aneurysm, called AVMSurvivors.org. AVM Survivors consists of over 500 folks and I'm happy to report that LivingWithTN has about 70 folks actively participating.
Given how well both networks are going and the personal satisfaction we get out of helping out on them, Ben and I decided to start another network, LivingWithAtaxia.org. We're kind of making this up as we go, but Ben and I felt confident we could handle another network because the participation at existing ones are so strong. We chose Ataxia because it's a neurological issue and a lot of people, 150,000, suffer from it. The network is off to a good start with 90 members already. The growth is mostly due to Alan Thomas, an incredibly inspirational guy, spreading the word. You can find Alan's blog here.
Anyways, I thought I would just give a quick update on our efforts. If you have ideas, suggestions or anything else you want to share, shoot me an email or check me out at LivingWithAtaxia.org. Cheers.