Sunday, March 14, 2010

Expedition Awareness for ALD

One of the patient to patient support networks we're most proud of at Ben's Friends (actually we're proud of all of them) is (Adrenoleukodystrophy (ALD)). It effects young boys and as you could imagine, greatly affects the entire family emotionally. ALD lacks a good online support group so six months ago we started one at We've met some very special people through ALDSupport and recently the network has started to catch on.  One of the newest members is Phil Golden who started Expedition Awareness,  an outdoor, backwoods journey across the United States to raise awareness for ALD. This is a really cool adventure that Phil has undertaken. Please take a minute to visit his site and see what he is up to!