We all showed up early Sunday in our AVM Awareness t-shirts and I took a video of the walk below (when viewing click the HD button in YouTube). My favorite part comes at the end when Jaclyn, a 9 year old girl from Pennsylvania, who has endured 4 operations offers advice to everyone with AVM out there. Inspirational isn't a strong enough word...
Monday, May 4, 2009
AVMSurvivors.org at AVM Foundation's 4th Annual Awareness Walk
I had the pleasure of attending the AVM Foundation's 4th Annual AVM Awareness Walk in San Francisco early Sunday morning. Sports Basement hosted the event (and a small get together the night before - thanks!). It was fantastic meeting some of the people on AVMSurvivors.org in person. You'll recall that my friend Ben Munoz started the site after AVM threatened his life. I heard a lot of stories and was blown away by the sense of strength coming from the survivors and their family & friends. These are some of the finest people I've had the pleasure of meeting in my life.